Baby Jack Rubin has been fighting for his life since last October when he was two months old. What appeared to be a diaper rash soon turned into a diagnosis of a rare, life-threatening disease called Langerhans Cell Histiocytosis (LCH), also known as Histiocytosis X. LCH is caused by an excess of white blood cells called histiocytes which attack bodily organs. While LCH is not a cancer, it is treated with many of the same protocols including bone marrow transplant. One in 200,000 people are diagnosed with this disease each year, the vast majority of them being children; one in a million suffers with Jack's type of LCH. To help raise funds for research to find a cure, a committee of friends and family, have partnered with the Histiocytosis Association of America in "Battle Acts for Jack" -- a six hour long "battle of the bands" style fundraising event in honor of the now ten month old Jack "The Rock" Rubin.
The event will be held on Sunday, July 27th from 12 noon to 6pm at Rhythms of the Night restaurant/bar located at 729 South Main Street in Manville, NJ. This event is open to the general public and admission is $10.00 per adult and $5.00 for children under 12 years of age. Food and beverages will be served at additional costs.
Visitors are encouraged to post comments through online channels at www.myspace.com/battleactsforjack and evite invitations. Attendees may contact Kristy Talorico via email at Battle4Jack@yahoo.com. To make a tax deductible contribution and to learn more about LCH, call the HAA at 1-800-548-2758 or visit their web site at www.histio.org.
Reservations are requested by contacting Rhythms of the Night at 908-707-8757 or visit www.rhythmsofthenight.net. From New York- take the NJ Turnpike South to Route 287 North, and then get off at Exit 12. Follow the exit ramp to the end of the road. Turn left at Weston Canal Road. Travel on Weston Canal Road to the end (approximately 3 miles), RHYTHMS is on the right